Comments on: Congenital Insensitivity to Pain – A Life Without Pain

By: Michael Anthony

Michael Anthony — Sat, 16 Apr 2011 23:34:00 +0000

My name Michael Anthony I’m DEAF……..

I have Problem My Brain made Mad

I need Stop Mad

By: Foxtiffany56

Foxtiffany56 — Tue, 18 Jan 2011 14:46:00 +0000

I am one. I have been looking for people just like me. I thought I was a loner. My name is Tiffany and I’m 18 years old.

By: Laurie Mohrlant

Laurie Mohrlant — Wed, 15 Dec 2010 19:15:00 +0000

Moira, my name is Laurie I had Congential Insensitivity to Pain. I have dealt with this since I was a child. I was on disabilty until I wanted to try to work when I was 19 years old. Then I was removed from disabilty. I have since been trying to for 2 years to get back onto disability and have been turned down now 3 times. I didn’t know if maybe I could find someone that has this condition and find out if they were able to get it then maybe I would be able to be put back on it. I would really like the opportunity to talk with you more please contact me back. Laurie Mohrlant. lmohrlant@hotmail.com

By: Moira McLean

Moira McLean — Sun, 27 Sep 2009 21:54:40 +0000

Hi,

There is now a Facebook Group called "A Gift Of Pain" for sufferers of pain insensitivity, and their families. It was created by the original founders of the Gift of Pain website - the only known support group and forum for sufferers, but who sadly had to abandon the website due to spamming and abuse.
Because of this, the Facebook Group is a "closed" group and members can only join once approved and invited by the admin team, or a request is made by one of the current members.
I am one of the current members and would urge anyone who is genuinely looking for help on these rare disorders, to contact me. I can then give help and advice from personal experience, and allow for access to be made to the FB group.
Thanks
Moira (mo2_cairns@hotmail.com)

By: Moira McLean

Moira McLean — Sun, 27 Sep 2009 14:54:40 +0000

By: Congenital Insensitivity To Pain – From the Comments | GetAnswers.ws

Congenital Insensitivity To Pain – From the Comments | GetAnswers.ws — Mon, 22 Jun 2009 16:09:22 +0000

[...] is the case with Moira McLean. Her daughter Alyssa suffers from congenital insensitivity to pain. You can read her story in her blog: Understand Alyssa – Life Through Her Eyes. With this [...]

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By: Congenital Insensitivity to Pain – A Life Without Pain | GetAnswers.ws

Congenital Insensitivity to Pain – A Life Without Pain | GetAnswers.ws — Mon, 22 Jun 2009 16:08:31 +0000

[...] reasons unknown, in congenital insensitivity to pain the connection between the nerves that sense pain and the brain’s recognition of pain is [...]

By: Moira McLean

Moira McLean — Sun, 14 Jun 2009 19:07:54 +0000

Looking for all others who have experience with pain insensitivity – whichever one of the pain syndromes you have. Please contact me via Facebook … use pain insensitivity in the personal message so I know to add you as a friend. Alternatively, go to http://www.understandingalyssa.blogspot.com and you can contact me via the blog.
Thanks