Comments on: Congenital Insensitivity to Pain – A Life Without Pain http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain Thu, 29 Jul 2010 04:29:32 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: Moira McLean http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain/comment-page-1#comment-721 Moira McLean Sun, 27 Sep 2009 21:54:40 +0000 http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain#comment-721 Hi, <br><br>There is now a Facebook Group called "A Gift Of Pain" for sufferers of pain insensitivity, and their families. It was created by the original founders of the Gift of Pain website - the only known support group and forum for sufferers, but who sadly had to abandon the website due to spamming and abuse. <br>Because of this, the Facebook Group is a "closed" group and members can only join once approved and invited by the admin team, or a request is made by one of the current members. <br>I am one of the current members and would urge anyone who is genuinely looking for help on these rare disorders, to contact me. I can then give help and advice from personal experience, and allow for access to be made to the FB group. <br>Thanks<br>Moira (<a href="mailto:mo2_cairns@hotmail.com" rel="nofollow">mo2_cairns@hotmail.com</a>) Hi,

There is now a Facebook Group called “A Gift Of Pain” for sufferers of pain insensitivity, and their families. It was created by the original founders of the Gift of Pain website – the only known support group and forum for sufferers, but who sadly had to abandon the website due to spamming and abuse.
Because of this, the Facebook Group is a “closed” group and members can only join once approved and invited by the admin team, or a request is made by one of the current members.
I am one of the current members and would urge anyone who is genuinely looking for help on these rare disorders, to contact me. I can then give help and advice from personal experience, and allow for access to be made to the FB group.
Thanks
Moira (mo2_cairns@hotmail.com)

]]> By: Moira McLean http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain/comment-page-1#comment-639 Moira McLean Sun, 27 Sep 2009 14:54:40 +0000 http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain#comment-639 Hi, <br><br>There is now a Facebook Group called "A Gift Of Pain" for sufferers of pain insensitivity, and their families. It was created by the original founders of the Gift of Pain website - the only known support group and forum for sufferers, but who sadly had to abandon the website due to spamming and abuse. <br>Because of this, the Facebook Group is a "closed" group and members can only join once approved and invited by the admin team, or a request is made by one of the current members. <br>I am one of the current members and would urge anyone who is genuinely looking for help on these rare disorders, to contact me. I can then give help and advice from personal experience, and allow for access to be made to the FB group. <br>Thanks<br>Moira (<a href="mailto:mo2_cairns@hotmail.com" rel="nofollow">mo2_cairns@hotmail.com</a>) Hi,

There is now a Facebook Group called “A Gift Of Pain” for sufferers of pain insensitivity, and their families. It was created by the original founders of the Gift of Pain website – the only known support group and forum for sufferers, but who sadly had to abandon the website due to spamming and abuse.
Because of this, the Facebook Group is a “closed” group and members can only join once approved and invited by the admin team, or a request is made by one of the current members.
I am one of the current members and would urge anyone who is genuinely looking for help on these rare disorders, to contact me. I can then give help and advice from personal experience, and allow for access to be made to the FB group.
Thanks
Moira (mo2_cairns@hotmail.com)

]]> By: Congenital Insensitivity To Pain – From the Comments | GetAnswers.ws http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain/comment-page-1#comment-533 Congenital Insensitivity To Pain – From the Comments | GetAnswers.ws Mon, 22 Jun 2009 16:09:22 +0000 http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain#comment-533 [...] is the case with Moira McLean. Her daughter Alyssa suffers from congenital insensitivity to pain. You can read her story in her blog: Understand Alyssa – Life Through Her Eyes. With this [...] [...] is the case with Moira McLean. Her daughter Alyssa suffers from congenital insensitivity to pain. You can read her story in her blog: Understand Alyssa – Life Through Her Eyes. With this [...]

]]> By: Congenital Insensitivity to Pain – A Life Without Pain | GetAnswers.ws http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain/comment-page-1#comment-530 Congenital Insensitivity to Pain – A Life Without Pain | GetAnswers.ws Mon, 22 Jun 2009 16:08:31 +0000 http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain#comment-530 [...] reasons unknown, in congenital insensitivity to pain the connection between the nerves that sense pain and the brain’s recognition of pain is [...] [...] reasons unknown, in congenital insensitivity to pain the connection between the nerves that sense pain and the brain’s recognition of pain is [...]

]]> By: Moira McLean http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain/comment-page-1#comment-511 Moira McLean Sun, 14 Jun 2009 19:07:54 +0000 http://www.diseaseaday.com/whole-body/congenital-insensitivity-to-pain-a-life-without-pain#comment-511 Looking for all others who have experience with pain insensitivity - whichever one of the pain syndromes you have. Please contact me via Facebook ... use pain insensitivity in the personal message so I know to add you as a friend. Alternatively, go to <a href="http://www.understandingalyssa.blogspot.com" rel="nofollow">www.understandingalyssa.blogspot.com</a> and you can contact me via the blog.<br>Thanks Looking for all others who have experience with pain insensitivity – whichever one of the pain syndromes you have. Please contact me via Facebook … use pain insensitivity in the personal message so I know to add you as a friend. Alternatively, go to http://www.understandingalyssa.blogspot.com and you can contact me via the blog.
Thanks

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