Comments on: TTP – Thrombotic Thrombocytopenic Purpura – A Rare Disease That Could Kill You

By: Ddickerson

Ddickerson — Tue, 03 Jan 2012 21:04:00 +0000

my mother passed 1-9-09 from ttp within 4days changed my life

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By: Suryalonso

Suryalonso — Mon, 28 Nov 2011 16:21:00 +0000

Hi mi name is marce, pray for my aunt shes right now at te hospital with ttp.

By: Suryalonso

Suryalonso — Mon, 28 Nov 2011 16:21:00 +0000

Hi mi name is marce, pray for my aunt shes right now at te hospital with ttp.

By: Msfaithful5

Msfaithful5 — Sat, 22 Oct 2011 22:27:00 +0000

Hi my name is Alora, my daughter Christal was first daignosed with TTP in October 2010.We learned of this disease by having to rush her to the ER, for what we thought was a very abnormal menstrual cycle.I must say I was very devastated with this news .She was 15 at that time. We were blessed that we were in Memphis TN where we have two of the best children hospitals, Lebonheur Children Hospital and world known St Jude Children Cancer Research Hospital. We were going to celebrate our 1 year TTP free anivesery this month. Unfortunately 1 week ago she was hospitalized with TTP again . Our doctors are wanting to try a chemotherapy drug ” Rituxin. I have done very little research on this medication . Have anyone else been given this drug for treatment ? I pray that it work and that she can live the rest of her life TTP free. And to everyone that has TTP. a loveone with it or have lost a loveone to TTP , my prayers are with you.

By: Littlefriendsla

Littlefriendsla — Sun, 28 Aug 2011 00:30:00 +0000

my sister recently died from this, within two 1/2 weeks of knowing this a serious disease and fatal

By: Nlee_car

Nlee_car — Sat, 27 Aug 2011 22:57:00 +0000

My son was dx with TTP in 2003 and we thought he was disease free. He suffered another attack of the disease in 2011. Please pray for him

By: Reginald Canty

Reginald Canty — Fri, 08 Jul 2011 23:24:00 +0000

hi nicole, i pray that you are comfortable, and i commend you for your courage. I know god still has a plan for you and it may be speaking to others . Make a friend of jesus nicole, and hear his word…..I know he will deliver you from your pain and discomfort and have an eternal resting place for you when it is you time. Your time doesnt end on earth, and ive found much comfort in knowing where my loved ones are when they depart this world. Im assured that he has these things in store for you and your blessings will continue despite your condition! god bless you and KEEP you nicole and i know your courage will lift many and provide you with a sense of life purpose and I will certainly pray on you behalf and youre loved ones! And remember god loves you and so do I.

By: Reginald Canty

Reginald Canty — Fri, 08 Jul 2011 23:09:00 +0000

I also am a ttp survivor….I was diagnosed in oct 2008, my platelet count was 6000 and i was having mini strokes and hyperventilating with chest pains. 2 weeks into plasmapheres those symptoms ceased, and went for plasmapheres 6 more weeks, 4 rounds of chemo and steroid therapy. I went into remission in july 2010, and now i just have bloodwork every 6 months. I thank god for the staff who attended to me and now I know this disease can be beaten because they now have more experience with this disease. I encourge anyone who has this disease or has a relative with it to trust god and he will deliver to you what you need and I pray for each of them…a speedy recovery and a return to a full portion of there health because it can be done and i am the proof! This condition is not as rare as it once was and the medical community has responded sucessfully. Following your drs orders, taking your medicine, and getting some excercise after plasma treatment has helped me greatly and im sure it will have positive effects for you as well. My prayers go out to each of you still afflicted and that prayer is that you trustgod and all that attend to you…..feed your faith and starve all youre doubts……for we are wonderfully made and blessed

By: Tewanna Bowling

Tewanna Bowling — Sat, 25 Jun 2011 17:50:00 +0000

All you guys hang in there I was diagnosed with TTP in 2007, and I am okay sometimes I have leg cramps, and headaches. I get blood done every 4-6 months.

By: Tewanna Bowling

Tewanna Bowling — Sat, 25 Jun 2011 17:50:00 +0000

All you guys hang in there I was diagnosed with TTP in 2007, and I am okay sometimes I have leg cramps, and headaches. I get blood done every 4-6 months.