Comments on: TTP – Thrombotic Thrombocytopenic Purpura – A Rare Disease That Could Kill You

By: mrs. v

mrs. v — Thu, 29 Jul 2010 04:29:32 +0000

my husband has TTP in2008 he had a seizure he was by amb to the er dr Todd told me he was going to die, he hid ttp 7 day later he was he stop breathing and 65 days later he was still in the hospital. his body hurt all over, very bad head ach , nurve pain ,the drs don't no what to do.
1/28/2009 it come back he stop breathing for 3 days he was in the hospital for 35 days he return 2 weeks later and stayed for3 weeks ,he went home with infused medicatiom for 1 month .because TTP my husbanb has high blood , blood sugar out of controle he has head ach pain body pain he burn on the in side his body is very weak TTP is still taking his body down. he cant remember, we try to go places and get very sick, he take his medication but TTP has stolen our life he is like a child in rage. crosbi@att.net 1 day change our life from riches to the clothes on our back.

By: christeen

christeen — Sun, 30 May 2010 07:44:57 +0000

I read Roys' response to your question and I agree with him but because you know this happen don't live in fear with it but know the symptons and signs and most of all know your body and have good communication with your doctor.

By: christeen

christeen — Sun, 30 May 2010 07:41:16 +0000

Hello Pamela,
I feel your pain, I lost my daughter to this terrible disease may 25, 2006. The pain seem like it just happened. We took her to the hospital because she had stomach pains and in 48 hours she was gone. Had never bee n really ill before that so we don't really know what bought hers on. I'm doing a research for my school project on this disease with hopes that it will help me to understand what happened. My daughter has 4 children who are all grown now but the were 15, 17 18 and 23 years old, they are really struggling with life since their mom has been gone. So pray for us as we pray for you. join a support group or find ways of talking about it I'm on face book with several others who have lost a love one to Ttp.
you can also email anytime you need to talk.

By: Roy

Roy — Fri, 30 Apr 2010 11:12:47 +0000

Hi Pamela,

I'm very sorry about your mother. TTP is indeed a hard disease to deal with.

Regarding Plavix, it's one of the drugs not often connected with TTP. There are others more commonly associated with it. This includes some types of chemotherapy, as well as other drugs: cyclosporine, tacrolimus, quinine, ticlopidine, and less than those oral contraceptives and valacyclovir.

By: Pamela

Pamela — Wed, 28 Apr 2010 21:34:56 +0000

My mother passed away from this horrifying disease in 2003. It is a cruel disease. She was life flighted to Vanderbilt hospital in Nashville where she was in a coma and on life support for 3 months, and was recessitated 3 times. She did come out of the coma and was in a hospital here for 4 months. She had plasma exchange daily, dyalisis 3 times a week, and chemo. She did survive only to relapse 2 months later and pass away, she was 64 and perfectly healthy up until the one day she had a seizure and went into a coma. The only thing we know that could have caused it was Plavix. Is this drug the only one known to cause TTP or are there others?
Also, my prayers are with the families of loved ones with this disease.

By: Roy

Roy — Mon, 22 Mar 2010 18:51:27 +0000

Hi,

There is a rare kind of TTP called congenital or familial TTP which is genetic – meaning it can be passed on. Your father probably didn't have that kind since it affects mainly children.

The other type (Acquired or idiopathic TTP) is usually not genetic, so there is no reason (as far as known now) to be afraid of passing the disease to other generations.

By: kind

kind — Wed, 10 Mar 2010 08:17:07 +0000

CAN TTP BE PASSED ON FROM PARENT TO CHILD
MY FATER DIED FROM TTP BACK IN THE 80' CAN I HAVE IT OR PASS IT ONTO MY CHILDREN

By: andrea

andrea — Thu, 04 Mar 2010 20:10:23 +0000

i just lost my best friend to ttp on monday. his first episode was 6 yrs ago at the age of 38. i'm so heartbroken…

By: Roy

Roy — Wed, 03 Mar 2010 12:22:25 +0000

Hi,

Sometimes autoimmune diseases such as lupus (We wrote about it here: http://www.diseaseaday.com/whole-body/systemic-...) can present as TTP. I'm sorry to hear about your cousin. TTP is indeed a horrible condition.

By: 313detroit

313detroit — Wed, 24 Feb 2010 12:29:49 +0000

How common is it that symptoms from Lupus would trigger TTP ? My young cousin passed from complications with Lupus and TTP? I too thank you for having this site and in reading the comments I see that many others appreciate you and have been affected by this disease.